“Hello, um…my name is Jennifer Blougouras. I just had a baby two weeks ago, and he has Down syndrome.”
This was the call I made to Stepping Stones on a bright, sunny morning in mid-April of 2005.
I had a picture-perfect pregnancy with my second child. Despite the fact that I was 36 I had no concerns; I was active and healthy. I had had several Level 2 ultrasounds, but no amniocentesis.
I never knew my son had Down syndrome until the day he was born. It’s funny because I had plenty of time to think about what could go wrong..
You need to learn to live in both worlds. By the time Matthew was 18 months old, I was a master at living in the “typical” world. I had two older children, and was very clicked in to my community.
This has been my touchstone since I learned that the child I was expecting, the son I so longed for, has Down syndrome.
Our daughter, Mary, was born seven weeks early, endured two surgeries in her first four weeks of life AND she had Down syndrome! She spent a total of six weeks in the NICU of Saint Barnabas Hospital.